TRACEY'S ITP JOURNEY

It’s been 6.5 yrs since my life changed with 2 late night phone calls, on consecutive nights) First, by my internist, who referred me to a hematologist the next day. My internist was pretty sure I had ITP. The next night I was told to get to the hospital ASAP where I spent 2 nights trying to raise my platelets to a safe level. Little did I know that this journey would take such an emotional, mental, physical, and financial toll on me. I thought they’d find a treatment and it would be “resolved.”

Treatments during this time have included very high doses of Prednisone, followed by Rituxin infusions, a splenectomy, Promacta, weekly N-plate shots, and finally Tavalisse, which I’ve been on for almost 4 years. All these drugs have come with side effects and alarmingly high costs.

About 4 years ago I discovered the PDSA which I’m incredibly grateful for. I’ve learned how to educate myself and become an advocate in my ITP journey and have connected with other people who have ITP. Through the PDSA, I’ve been inspired to help others navigate their ITP journeys.

I’m blessed to have such a great support team-my family, friends, and doctors. My faith has helped me weather some very difficult moments, and feel mentally strong with the help of a therapist. Meditation and Reiki have also helped to reduce my stress. I’m here to live in a BIG way, embracing life and being grateful.

I’m walking in memory of Lisa Bauer Lewandowski , who fought a very courageous battle with ITP, before passing away last year due to complications. She often cheered me on when I was frustrated with my struggles. She was truly a bright light for those around her.

Thank you all for your continued support, prayers, and positive vibes!

 

 

 

 

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