HALEY'S ITP JOURNEY
I was diagnosed with ITP - Immune Thrombocytopenia 5 years ago and it has changed my life. It was the start of a rollercoaster of illness, anxiety, depression, and many different trial treatments. My future was so uncertain. ITP is a blood disorder where your auto immune system mistakenly attacks and kills your platelets, the part of your blood responsible for clotting. Without platelets, you can have severe bruising, nose bleeds, stomach bleeds and even life-threatening brain bleeds. After about 6 months experiencing several of these bleeds, I was fortunate to receive a treatment that continues to work for me to keep me stable.
I aim to spread awareness and raise funds for this rare disease. The Platelet Disorder Support Association (PDSA) was founded to ensure patients, like myself, would no longer travel the ITP journey feeling confused, frightened and alone, and to ensure that this rare diagnosis is accompanied by information and resources, and to encourage research and better treatment options for patient-centered outcomes.
Thank you....and wishing you Health and Happiness,
ITP Warrior - 5 years