Welcome to Team Haley - 2nd Annual Walk for ITP
April 28th will mark the 4th year anniversary of my daughter, Haley's, ITP diagnosis. Haley, just shy of 16 years old at the time, platelets were critically low for months while her Hematologist tried to find a treatment that she would respond to. When he finally found one he felt would work, we discovered that the treatment was not covered by the Government or our private drug plans. Like Luca, Haley had to wait while we tried to fight for funding. Already suffering constant bruising and petechiae, nose bleeds, gum bleeds, bleeding from her scalp, and internal "gut" bleeds.....we were terrified that the funding wouldn't come soon enough. However, our community, family and friends stepped up and raised the funds needed to begin her treatment! We are forever grateful to them! Within a few weeks of starting treatments, 6 months after being diagnosed, Haley's platelets rose to a safe level. Although her counts have fluctuated, nearly 4 years later, Haley remains on a daily treatment to increase her platelets and let her live a relatively normal life. We just pray that she remains stable and that this treatment continues to work for her. She attends Wilfred Laurier University and is finishing her 2nd year of Kinesiology. This year Haley will be sharing the story of her ITP journey prior to the walk, to help raise awareness and share the struggles faced by those living with ITP.
We are walking for Haley and in memory of the ITP Warriors who lost their battles, in particular Luca and Glen, two young boys who were taken too soon due to ITP. We are Hoping for a Cure, Praying for Strength, and Fighting for a better tomorrow for those living with ITP. We would be thrilled if you would join us in this fight to raise funds to provide education, research and support to those living with this rare disease.
Thank you!
Julie and Paul Agius
#parentsofchildwithITP
#ITPWarrior
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